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Showing posts from December, 2016

Random Thoughts and Updates: Christmas, Meds, and Making History

So Christmas was Christmas. It was nice to be together even though I had to postpone dinner a bit to get my stomach in better shape. I am not really in the mood to write about Christmas. Every one of them we have is good because we are all here, right? Brian keeps being Brian. The majority of his weakness is in the left lower leg with some in the right lower leg and also the left hand. He uses his cane in the house generally and his cane and "afo's" (leg/foot braces) outside the house. He is retired so I try to make a point of getting us out of the house as I think it helps his mood and mine too. There is progression, but not rapid, hit you in the face progression. No meds for either of us so far, at least none for Depression, anxiety, etc. We keep an open mind to if there were ever a need for that, but for now we can be concentrate/get things done and enjoy some things too, and anxiety is not a run-away thing. We can both get a handle on it. If that changes, either ...

Today

"Someday we will be able to name a cure after Lou Gehrig instead of a disease" says the ALS Association website. Yes, yes we will. I would love to live to see that day. Today though, we can live a life not defined by ALS. You gotta watch that. ALS, like any serious illness will take the present if you let it. You sit around, get fearful on the future and before you know it you are not appreciating the day. We have three great dogs and four great cats and each other besides. We have friends, we have love, we have comfort. We have today, and today is actually pretty good. Hope everyone is enjoying their holidays. It's our ninth Christmas season together. Lucky us.