Life and Love with ALS

Random thought: I miss normal. I miss when ALS did not live in our every waking moment in one way or another, and some of our sleeping ones too. I had an odd little dream the other night that Brian was being super nasty and I was really confused until I started getting really mad and then in the dream he looks at me and says "What the hell happened?" I replied "Damned if I know". I woke up when we screamed together in the dream. Then, well after a dream like that you get up and do your day and it's just what you do. I've said this before, you live with it and it lives with you and it is what it is, each day. My gratitude for the people in our lives is boundless. You know who you are. I will never stop saying thanks for hanging in with us. Brian and I had a great trip up North and plan to do another in September. It is sooo nice to be in a summer now, no funky weather worries. We have learned to be proactive about any items that are helpful. The four pron...

Blogging, commonplace as it is now is actually something of a controversial activity. Some feel it's an exercise in self absorbed vanity. It has been said by some that people who have lives don't write or read blogs. I disagree. I think quality and purpose are in the author's hands. There is value in Telling our stories, shavings our perspectives whatever those may be. I have decided to blog again to share parts of our lives with those who care to read about them. I also think that blogging gives me a perspective on things that is good- I relate well to the written word and learn more as I write. What this blog is not is some sort of true life recreation of a sad movie. Nor is it emotional porn. As in anyone else's life, there is good and bad. Life is a terminal condition. What makes our situation special is dealing with a condition that is disabling and having a terminal diagnosis. For a Brian, we know how this story ends not in an abstract but in a specific way. S...