Updates
I have not posted since the Fall and I am doing it now more to update friends on our status these days. A lot changed since that September post. Well, maybe not a lot to most eyes but a lot to ours. After a run in with Radicava, the new drug for ALS Brian got appendicitis, lost some significant strength, and we in general started to settle into the realities of middle stage ALS. We are blessed that 20 months after an ALS diagnosis Brian still walks with a walker, swallows, breaths, and talks without assistance. Brian now lives on the first floor, no more stairs. A friend comes n a few hours a day during the week for lunch. No more driving, and he pretty much choses not to leave the house except for the occasional medical appointment. It’s not that he is depressed, he is just comfortable where he is and prefers not to be out and about to the glances of strangers. Friends and visitors are welcome, stray glances at that guy with the walker doing odd stuff with his hands is what B...